Showing posts with label disability. Show all posts
Showing posts with label disability. Show all posts

Thursday, January 7, 2021

While Nero Tweets, the Elderly and Disabled Suffer

  

Free use image by John Hain on Pixabay

This post is a response to this post:

https://kalpanawrites.com/shadow

I can definitely relate to the feeling of being a shadow of my former self. In fairness, my former self was a workaholic who didn't take care of herself at all. I'm kind of surprised that I didn't end up in an early grave.

I have been waiting on a disability determination for almost a year now. That people are punished for becoming disabled is unconscionable to me. However, seeing as my country is figuratively burning while Nero tweets (or he would tweet if he hadn't been booted off Twitter at least temporarily) nobody gives a rat's hindquarters about handicapped and elderly people, I can assure you.

Ornery Owl Has Spoken



Free use image by Open Clipart Vectors on Pixabay


Friday, February 7, 2020

Tan Renga Wednesday on Friday: Last Leaf


a last leaf
swirls on the wind towards the east -
first snow falls gently
the falling snow is pleasant
the icy roads are not so

~Chèvrefeuille & cie~


notes
The Hokku stanza was written by Chevrefeuille. The Ageku was created by me. I do like the snow, but I hate driving on icy roads. I've had a couple incidents when doing so which left me with a bit of PTSD. I tend to tense up when I have to drive on icy roads, which makes doing so a bad idea.

I will try to catch up with the poems over the next few days. I was working on a short story for blog.reedsy.com. If you are looking for a short story contest with no entry fee, they have a weekly contest here. Go to the apps section of the page and choose "story prompt."

Also, if you're looking for help with editing or publishing your book, you can look at what Reedsy has to offer here. Using that link will get you $25 credit on any of Reedsy's services.

I believe I may have had another TIA. There always tends to be a cognitive shift when one of these happens. It's hard to explain. It isn't as if I'm having short term memory issues (well, no worse than I ever did). It's simply that the WAY I think changes. At this point, I find myself needing to be a little more measured in my output. I get tired very easily. It's frustrating because although I've never been a Type A personality by any means, I've always been very productive.

I know that I'm vulnerable to vascular problems because of my diabetes. Well, I'm perfectly happy to keep my blood sugars in check, which I can do if I have, you know, ADEQUATE INSULIN! Which my health care provider and Medicaid seem to be conspiring not to provide me. Going without insulin for weeks at a time is, I don't know, a bad thing when you're diabetic. 

The elite devils in charge of things don't care about that, though. They want the poor and the handicapped dead. Of course, then they won't have anyone to do the menial jobs that they revile, but I wouldn't give them too much credit for being smart.

Yeah, I said "handicapped" instead of the more politically correct "disabled." I honestly don't see what the difference is. I can apply both to my own condition, and I don't find either one offensive. Sometimes people become so busy picking nits that they forget to work on the issues that really matter.

Friday, December 20, 2019

Inner Champion Workbook Chapter 5: Take the First Step (Fat Friday Edition)



Disclosure: If you purchase a product through any of the links in this post, I receive a small commission from Amazon.

Fair warning that I am having a dark day despite it being bright and sunny outside. In fact, the bright sunniness makes the inner darkness worse. I hate when people say things like "how can you be depressed when it's so beautiful outside?" Please, if you say that sort of thing to someone who tells you they're feeling depressed, STOP! It doesn't help.

And now, on with the show.

An important goal that I’m going to achieve:

I don't know if this will happen or not, but there is an empty building across the street from my home which is zoned for commercial use. I will be able to access my 401K without penalty at 59, in other words, about four years from now. If the building is still available at that point, I am thinking about investing in it and bringing my idea to life.

"It won't be available then, Cie," you are probably saying. "Real estate goes fast!"

In the city, yes. Not out in the middle of nowhere. The house I'm currently living in had been empty since 2013.

"Well, what the hell do you think you're going to do with a building in the middle of nowhere, Cie?" you say now. 

I am thinking about opening a goat yoga studio.


"Goat yoga?" you sniff. "Who the hell is going to drive to your stupid goat yoga studio in the middle of nowhere?"

As my son observed when I postulated that I could probably pull in a few yuppies from Denver to drive out to Podunk on weekends for a goat yoga session:

"Denver? You mean Boulder."

He's right.

"Oh, and are you going to teach yoga, you disabled lardass? Who would want to take a class from you?"

No, I'm not, because I don't know the first thing about teaching yoga. I plan to put out a call for volunteer instructors, who would be allowed to record their sessions, pass out business cards, recruit people to sign up for their regular classes, and have a tip jar available.

By the way, a big rule at my studio will be this:

NO BODY SHAMING!

No fat-shaming.

No thin praising.

No encouragement of weight loss. No selling weight loss programs.

I want to provide an encouraging environment for every body. I want my studio to operate with a Health at Every Size (and every ability) approach.

Why this goal is important to me:
Most yoga classes shame larger students, behaving as if a literal monster just walked into the room when a big person comes in. It is also difficult for disabled students to find a class. I want the classes at my studio to encourage EVERY BODY, regardless of size or physical ability.

Image by filinecek from Pixabay

Why goat yoga?

Well, for those who have never heard of it, goat yoga is actually a thing. The presence of the goats is shown to have a calming and encouraging effect on those participating in the class. The goats won't have to learn the yoga poses. They'll be free to wander in and out of the classroom. And if a participant spends the entire session just playing with the goats, that's perfectly fine! Basically, the goats are therapy animals.

What has been preventing me from taking the first step?
Lack of access to funds.

How can I remove these obstacles or work around them?
Currently, I'm just waiting for four years and hoping nobody buys the place in the meantime. I also have a potential secondary site in mind.

The first step I am going to take toward achieving my goal:
I am currently making micro-investments with my small and undependable pay. I am hoping these will start generating passive income. I am also trying to promote my freelance literary services, as well as continuing to do reviews. I am going to apply to Kirkus Reviews at the beginning of next year in the hopes of bringing in another income stream.

For support and accountability, I am going to share my goal with:
My son knows, and now you all do too.

I feel better after writing this post. Sending positive energy to Lauren for the gift of her workbook, to Linda for the gift of Health at Every Size which helped me break out of the diet mindset almost 10 years ago, and to Caroline for the encouragement not to fall back into that limiting mindset.

Here are a couple more books to help you say FUCK YOU to diet culture and instead concentrate on REAL health, both mental and physical.


Sunday, November 24, 2019

The Crazy Creatives Cheerleading Camp's Come As You Are Party + Ornery Musings: Why Book Reviews are Useful

Image by Pexels from Pixabay

As the late, great Shorty Medlocke used to say, howdy solks, I mean folks! If you don't know who Shorty Medlocke was, it's time for you to at the very least hit Wikipedia and brush up on your music history, and then go listen to some Blackfoot, where you can hear Shorty's grandson Rickey shred on some sadly underrated Southern rock masterpieces.

Sadly for you, this post is not about great blues musicians, twentieth-century radio hosts, or great guitarists. It's about book reviewers.

At the bottom of many posts, you will notice the image of a plump owl carrying a couple of books, one with a pentagram and one with an anarchist symbol. This owl is my alter-ego, my inner badass. Where I am infamous for apologizing for myself constantly and becoming defensive quickly, this owl never apologizes (unless she has actually done something wrong) and has no time for defensiveness. If she is under attack, she will fight back, but she doesn't harbor any of the insecurities that I do. Therefore, defensiveness is foreign to her. This owl is unapologetically, authentically herself.

Me, on the other hand, I tend to always wonder if I'm doing something (or anything) right. I am a horrible--I mean adorable--little (okay, large) bundle of insecurities. I have both physical and psychological disabilities, and I also have ADD and dyslexia. Dyslexia does not have only one manifestation, by the way. I read most things clearly, and I'm a relly gud spelur. My dyslexia tends to present itself with numbers more than words, and I have a great deal of trouble with tests involving pattern recognition, which led to me being labeled borderline retarded when I was in the sixth grade. That label was a thermonuclear hit to my already severely compromised self-esteem, particularly when one of my nastier classmates overheard my parents and the school psychologist discussing it in the hallway and proceeded to ask my father if I really was borderline retarded, to which he naively replied, "yes, I'm afraid so," rather than telling her to run along as he should have.

So, here I am in my fifties with a lifetime of abject failures behind me, disabled and living in poverty, and I review books for a living. Seriously, that is how I eke out a living, and sometimes I become rather cynical about it. Here I am, doing something completely useless yet again because being useless is my M.O. in life. I would do very poorly as something like a virtual administrative assistant or customer service agent. I have moderate anxiety about talking to people on the phone, and if I get bored, I get distracted. I would be fired from these jobs fairly quickly. However, I can read books. These days I prefer e-books because of my vision and because they don't take up space on my shelves. I also enjoy listening to audiobooks. 

Anyway, I possess the ability to read, opinions are like assholes, and I am an asshole with an opinion. So I sneaked in the back door at the Online Book Club and tried my hand at doing reviews for them. My first few reviews were unpaid, and then I started getting paid for my efforts. Doing reviews for paid review services like Online Book Club means that I can do reviews on request for independent authors without charging money. My costs for an independent review are as follows:

If the book is available on Amazon, you give me permission to have an affiliate link in my review post. You won't pay me a cent, but if someone buys the book through the link, Amazon will pay me a few cents.

If you like the review, you provide a link to it on social media.

You understand that providing me with a copy of your book does not guarantee a positive review. There may be reviewers who get their rocks off writing negative reviews and destroying authors' dreams. I am not one of them. I love giving positive reviews. With most of my less stellar reviews, I find that the problem with the book tends not to be the story itself, but the execution and lack of proper editing. By the way, I am also available as a beta reader.

Very rarely do I give scathing reviews. On the occasions that I have done so, it is because I find the author to be an odious jerk with awful opinions who targets vulnerable people for ridicule.

You may be saying (as I sometimes do), "well, that's all fine and good, Cie, but the world wouldn't stop turning if all the book reviewers were abducted by aliens. Book reviewers do not provide vital services such as emergency services personnel, medical personnel, construction workers, mechanics,  teachers, grocery clerks, customer service personnel, cleaning crews, or, pretty much anyone else provides. Reviewing books is fluffy stuff and isn't a real job. Like, you know, the kind of work that you claim you can't do anymore but probably could if you tried, and don't give me that 'but I can't walk very far or very fast, I can't stand up for long periods of time or my back will start hurting, or, but my diabetes fucks with me and starts making me weak and confused' bit!"

Well, you hopefully don't say that last part, but my inner voice is, not to put too fine a point on it, an absolute twat. Anyway, the overall gist is, most people find book reviewers to be non-essential members of society, and I sometimes feel angry at myself for doing a job that most people see as sprinkles on a cake, not even icing or pretty decorations, just sprinkles. The kind of sprinkles that come in a jar and you pay a couple bucks for them and you sprinkle them on your kid's birthday cake and it makes the kid happy. Except that I have the potential to make people's inner children unhappy with my words.

However, today I read a wonderful review from one of my fellow Online Book Club reviewers, and I would like to share that review and my thoughts on it with you. Please follow this link to read it.

Here is a copy of my comment for the reviewer:

Thank you for your lovely, descriptive review. I had tears in my eyes reading it. Although I grew up in a home with both parents present my family was inadvertently emotionally abusive and didn't understand someone like me at all as they were very perfectionistic and I had learning and psych issues (I have type 2 bipolar disorder that wasn't correctly diagnosed until I was almost 40.) I did a lot of the same things that Eva did, moving out with my now-ex-husband when I was 19, being divorced by 29, having a string of abusive relationships. I really appreciate reviews like yours which tell me everything I need to know about a book, even better than simply reading a sample. Have a good day.

Sometimes you can teach an old dog new tricks. While being a book reviewer is not an essential occupation such as those mentioned in the previous paragraph, nor is it a meaningless occupation. Too many bullies calling themselves critics have given a bad name to critiquing. A professional critic should endeavor to be kind, discussing the best aspects of a work while, if necessary pointing out areas needing improvement.

~Cie the Ornery Old Lady~


Free use image from Pixabay
Cie reviews books and is no longer ashamed to claim it as her profession.
She is also available as a beta reader


I'll bet that some of you would like to know which book I was referring to when praising my fellow reviewer. Well, now you know and can get yourself a copy! 
Disclosure: If readers purchase a copy of this book through the preview link, I receive a small commission from Amazon.


Wednesday, October 16, 2019

OctPoWriMo 2019: Day 16: Harried to the Grave

Image by fancycrave1 from Pixabay

it does not matter
matter one measure if
if you measure your time
time on an Apple watch
watch your time on an old
old beat-up analog tick-tick 
tick-tick the sound
sound as time is running out
out of your wasting life
life where triumphs come
come slowly and don't seem
seem to stick around at all
all the while your life is wasting
wasting away fast as a wish
wish you would stop
stop giving away 
away all your me time
time to see time as
as a commodity time
time does not come free
free time does not align
align with being a successful
successful mess who never
never ever stops
stops to wind her old watch
watch time slip away 
away until one day 
day when there are
are no more days
days are numbered from the first
first moment you take a breath
breath that leads to death
death comes for us all
all of us must fall
fall back into the time
time when time didn't matter 
matter meant nothing
nothing meant anything
anything was possible
possible dreams
dreams become schemes
schemes become obsession
obsession consumes life
life becomes lie
lie down and die
die and become
become as you were before earth
earth before your birth 
birth
earth

~Cie~



Note:
I was always one of those "I'll sleep when I'm dead" kinds of people. I worked long hours at physically taxing jobs. I worked long weeks filled with long hours. I was proud of being able to push myself well past the limits. 
My diabetes got worse, I had a small stroke, and I had a severe injury to the median nerve in my left arm. My ability to work long hours at physically difficult jobs was gone forever. At the point when I had a small stroke, I was fired from my job as a home health nurse.
I live with fairly frequent suicide ideation, but the actual planning levels are pretty low as a rule. After I was fired, I started making plans to commit suicide because I felt like the world's worst fuck-up, like without my job I was nothing. 
This is not going to be one of those "oh, but I'm so glad I didn't because I found God, got down to a single-digit pants size, somehow started looking half my age, married GQ Cover Model Guy, and now my life is a Hallmark Channel movie" stories. 
Nah.
Still a crabby, fat, romanceless, agnostic, middle-aged, broke-ass curmudgeon. Still would be homeless if it wasn't for my son's kindness. 
But I am glad I didn't commit suicide because if I had I wouldn't have been able to help my son get this house, and I wouldn't have found me.
Me is kind of an asshole, but we're on better terms these days now that I've had the time to get to know her a little.
Also, I have a feeling that sometimes those Hallmark Channel happy crappy stories about pretty people hooking up and living happily ever after might even make some people depressed. Like, you know, me. I think some people may need to know that an old crabby fat bitch learned that old, crabby, fat bitches have something to offer too without changing one fucking thing about themselves.



Friday, October 11, 2019

Carpe Diem Renga with Issa: Sparrows


spring peace--
after rain, a gang war
garden sparrows
the seeds that I have planted
are a victory buffet

don't let the plum blossom guard
cut your tongues...
Sparrows! 
let voices be a whisper
until you are safely past


are the sparrows too
having a private party?
plum blossoms
no, I was not invited
I now watch from the window

while I watch
he's off to make a living alone...
baby sparrow
sometimes the ones who leave home
invite the parents to stay

living in harmony--
the sparrow has
both parents!
will the parents be able
to live in harmony too?

on the tip of the
newly sprouted bamboo...
a baby sparrow
a small and innocent thing
in a world without a heart

~Issa and Cie~



Notes:
The Hokku stanzas in these Tan Renga verses were composed by Kobayashi Issa (June 15, 1763 – January 5, 1828). The Akegu stanzas were written by me.
The Akegu in the last three verses are references to my son, without whose kindness I would be homeless. The property he bought will eventually also become home to his father who is currently living in Arizona helping his own father. When his father passes, he will sell the place in Arizona and move here.
We were divorced in 1994 when our son was four years old, and we have lived in roommate situations since then, although I was always relieved when he moved on to something else if I am honest. That probably won't happen this time, due to compromises in his health as well as mine. However, this is a big enough place that we should be able to keep from killing each other.

Monday, September 2, 2019

About Cie Monday + Inspire Me Monday #241+ Promote Yourself Monday + Carpe Diem Acts of Devotion 2019: Adam's Peak


I can only dream
of walking up Adam's Peak
body compromised

~Cie~


Notes:
Once we are fully moved into our new home, I would like to begin practicing remote viewing again. I will also be taking daily walks to the park and hope to increase my endurance enough to be able to walk from one end of the main street to the other. Grover is a very small town, so I don't want you-all thinking: "Wow, Cie, impressive goal walking twenty miles!" 
I would also like to rehabilitate myself to the point where I can walk up a set of stairs without having to pull myself up using the banister or to lean against an opposite wall to support myself. However, one thing I need to avoid is making this a shame-based goal, i.e. calling myself a loser because I need to support myself to climb stairs. We are taught from the time we are very young that it is shameful to be in a lesser state of physical ability than a competition class athlete, and I'm not being particularly hyperbolic when I say this. It's horrible.
Your physical abilities and disabilities are not a marker of success or worthiness. They are simply conditions that exist.
With physical therapy, I was able to bring my left arm back to a state of functionality where I'm not in constant debilitating pain. I still don't have the full range of motion in the arm. I am not a better person for having an arm that functions reasonably well than I was when I had an arm that I could barely use, and having an arm that was fully functional and had normal sensations would not make me a better person than I am now.
Physical ability is not a hallmark of greater worth, and physical disability is not something that people should be punished for.


Visit us at www.goodstufffromgrover.com. We're nearly there! The moving truck comes Friday!



Sunday, July 28, 2019

Come as you Are: J.O.B. to Poor but Free

Image by Grae Dickason from Pixabay

This poem describes very well how I felt about being in the Employee Mindset for nearly 40 years. The line "grey upon greyness" is particularly evocative.

That's exactly how I feel about the Life of an Employee working a J.O.B., which I did from the time I was 16 years old until this year when my disabilities knocked me out of the working life for good. (I'm 54 now and am working from home.)

There were some things about the jobs I did that I liked, but, overall, it was an extremely soul-destroying situation. I absolutely felt like I had to give up bits of myself all the time.

I certainly don't like living in poverty, which I am at this point. However, one thing is true which it never was when I was working a J.O.B. (stands for Just Over Broke). I am really and truly myself, not someone else's servant. On a soul level, that is tremendously freeing.

~Cie~

Monday, June 3, 2019

Troiku Challenge 2019: Day 2: My Native Town

Image by David Mark from Pixabay

my native town
far, far away--
burgeoning trees.

my native town
i never fit anywhere
and now i must go

far, far away--
i make a new life happen
i will still see you

burgeoning trees
buffeted by prairie wind
my new home is here

Santoka Taneda & Cie


Notes:
The Sleigh portion of the Troiku was created by Santoka Taneda (3 December 1882 - 11 October 1940). The three "horses" were created by me.
I was born in Denver, Colorado on 15 February 1965. My parents were actually living in Laramie, Wyoming at the time. I was born in the middle of a blizzard at 6 A.M. and have caused nothing but trouble ever since.
After my brother was born on 17 March 1969, my parents moved to Albuquerque, New Mexico so my father could finish his doctorate. We lived in a rundown house in a bad part of town. There were fire ants, black widow spiders, and cockroaches the size of school buses. However, we had a half acre of land and were allowed to have chickens. We planted corn and beans. There were horned toads and skinks. The neighbor had pheasants and bees. He was an okay guy who pretty much kept to himself. His wife was a fire-and-brimstone Fundamentalist who called me a filthy slut for taking my shirt off on a hot day. I was four years old at the time.
A New Mexico accent is similar to a Texas accent, and when we moved back to Colorado when I was ten years old, all the other kids ridiculed the way I talked. I was already shy, and this led to me becoming even more withdrawn. I always hated school. I was never well-liked or anything even in the same zip code as popular. To this day, I still hate the sound of my own voice and I hate when people ask the innocent question of "where are you from?" My knee-jerk reaction is to answer "Mars," because I've never felt like I belonged on this planet.
Many, many years later, I live in the suburbs of Denver, but it costs too much to keep living there. Denver is one of those cities whose working classes can't afford to live there. A condo or small townhouse in Denver costs around $250,000, and then the owner still has to pay HOA fees which average $600 per month in the Denver area. The average salary for someone in the working classes in the Denver area is $12 per hour. See how that doesn't add up?
For someone who is disabled, things are even worse. There is a waiting list to even be considered for subsidized housing. The homeless population is growing by leaps and bounds. Even a modest apartment is out of reach for people in the working class.
Thus, people in the working class are moving out of cities like Denver to rural areas. If they continue working in Denver, they have a long commute. If they are unable to continue working, they end up on the dole. 
My son and I are moving to Grover, which is approximately 110 miles northeast of Denver. He has a modest amount of money being given to him by his father following the sale of farmland. This money allows for the purchase of a six-bedroom historic hotel and renovations on said structure. Property taxes in this area are low. The average person living in this area falls below the median income for the state and many fall below the poverty line. My son and I are among the people who fall below the poverty line. We are both disabled and neither of us can work conventional jobs.
Moving to this place is a risk but also an opportunity. 
It is also our last hope.
Here's to Grover, my last stop on the journey, and possibly the first place I'll truly feel I can call home.
Join us for updates and other curiosities at the Good Stuff From Grover site!


Sunday, May 26, 2019

Carpe Diem Weekend Meditation #86 + Weekend Mini Challenge: A Portrait of Dystopia

Dystopian Portrait
Photoshop Manipulation by The Real Cie

Utopia was
Only ever a sad lie
Flawless fallacy
Pretty cars, pretty people
Not a place for those like me

~Cie~



Notes:
Today I found a couple of great prompts and flipped them upside down. 
The Carpe Diem Weekend Meditation prompt asks us to examine the concept of utopia in a Haiku or Tanka. Mine is more a Senryu than a Haiku. I do not question the existence of Utopia, but I postulate that it is more like Metropolis. It exists for a very small percentage of people. Most people are on the outside looking in, and some are completely crushed beneath the boots of the beautiful and careless dwellers of Utopia.
So, what portrait did I paint?
That of one of the people crushed beneath unrealistic expectations of beauty and brilliance and casually cast aside, not worthy of any sort of rescue because they do not adhere to society's standards of prettiness.
The person in the portrait is me. I chose it because I was sitting at a rather dismal-looking bus stop on the day of the 2017 Women's March. I would learn that day that not only had my health deteriorated more than I previously realized, but people are utterly self-absorbed, even the ones who claim to be "progressive" in their approach.
I managed to get through the entire march, which is a miracle in itself considering that I almost stopped several times along the way because I was becoming weak, but I had also become confused enough that I was afraid I wouldn't be able to find my way back to the bus stop. 
When the bus stopped, everyone else shoved on board and the bus driver told me he wouldn't be able to take me. I said I understood, and I understood his position, but I kind of thought all those other people were assholes. I started feeling that wouldn't have happened to me if I was young and pretty.
 I was ravenously hungry. I had a Snickers bar, but I was trying to conserve it for "the right moment." With a lifetime living with ED (stands for Eating Disorder), I had learned to deny myself food up until things became critical. They were critical, but not critical enough.
I got on the next bus about a half hour later and had to stand. I was wobbling all over and my eyes were rolling back in my head. Exactly nobody gave any fucks. In fact, one spectacular dudebro about my age chortled and said: "I had to stand all the way there, now it's your turn."
Despite the fact that my eyes were glazed over, I managed a withering glare and said in a steely if somewhat shaky voice: "Buddy, I had to stand the whole way there too. Don't even try to pull that crap on me!"
He turned away and noticed a confused-looking young woman holding a bus schedule. He grinned and invited her to sit down in his seat. She didn't speak much English. He leaned in close to her in order to better "help" her, I suppose, because he was just a helpful kind of guy, at least if the person in need of help was a pretty young woman.
When a seat finally opened up, I scooted my ass into it as quickly as I could and scarfed the Snickers bar as if I hadn't eaten in a year. By the time I got off the bus, my feet were swollen and aching so badly I could hardly walk. This time, however, an angel appeared in the form of a very sweet Latina lady in her late 30's or early 40's who offered me a ride. I thanked her profusely. After the callousness I'd just experienced, her generosity brought tears to my eyes.
I knew at that point that I could no longer take part in events such as marches because I was no longer strong enough to do so physically.
I lost my job a couple months later because I became extremely ill and was pushed to keep working by my supervisor in spite of having a serious respiratory infection. I had a small stroke while working one night and ended up getting fired. Once my savings were gone, which happened reasonably quickly, I ended up living in poverty and have been there ever since. If it weren't for my son allowing me to couch-surf, I'd be sleeping in my car.
Utopia exists for a very small percentage of people. I used to dream of being something wonderful, of being a star, but over the years I've come to see that often those dreams end as nightmares.
So, you have a portrait of the kind of person that society doesn't want to acknowledge even though there are a lot more of us than most people care to think, and my skepticism that Utopia exists for anyone but the well-heeled in anyplace but dreams.

Saturday, May 11, 2019

Weekend Wrap-Up: A Leap of Faith that Hopefully Doesn't End in a Giant Splat

Image by Marta Cuesta from Pixabay

I have reached a crossroads in my life. Not a little itty bitty crossroads either. A big hum-dinger of a crossroads. So big, in fact, that I wrote the following poem and note about it:


cricket silence
between scraping sounds
autumn begins
for me a new beginning
or perhaps the end of all

Jane & Cie

The Hokku (Haiku) portion of the poem was written by Jane Reichhold. The Ageku, or closing stanza, was written by me.
Come the fall, I should have pictures of the old hotel my son is buying to renovate. This probably sounds a lot posher than it is. This building is in a town listed on the Colorado Ghost Towns website, and it needs a lot of work.
For me, this move is literally either a new beginning or the beginning of the end. I have run out of options.


Here is the Grover Hotel. I am going to be in touch with the Colorado Historical Society on Monday to see what needs to happen for us to receive a grant to help us with renovation. 
The Grover Hotel was built in 1900, at the point when Grover was a boom town. After it was a hotel, it was a church, a hospital, and then a boarding house. I am not entirely sure how long it has been vacant.
There are significant repairs which will need to be made, including the roof. My son and I are meeting with a plumbing contractor and an electrician on Tuesday. We are fully committed to making this building once again as beautiful as it is stalwart. It has a lot of problems, but we believe that it can once again be an asset to this tiny town.
Concurrent with my commitment to making this move 100 miles from Denver, I made the decision to quit my job. 
I have never been unemployed for long periods of time. I've worked ever since I was 16 years old. Being unemployed makes me feel like I've given up, even if logic dictates otherwise.
I had two cars: a 2011 Ford Fusion and a 1998 Subaru Forester. The Forester was bought used and ignorantly. Always take any newly purchased car to your mechanic for inspection before committing to purchase. I did not do that. The Forester has been a money pit, and it overheated on me for the last time last Friday. I am going to let the mechanic sell it for parts.
This leaves me with only the Ford Fusion.
Working as a delivery driver comes with significant risks. Fortunately, the only two accidents I've been in with the Fusion have been minor and the other driver was at fault in both cases, so their insurance covered the cost of repairs. As a reminder, never make a deal with the other driver, always go through the insurance company for repairs. 
If I had agreed to have the parents of the young lady who slid into my car when the roads were icy pay me for the initial estimate, I would have been screwed six ways to Sunday. The initial estimate quoted repairs costing less than $500. The actual cost was nearly $2000. 
In any case, I am not in a position to risk my now sole vehicle by working as a courier. I need to concentrate on preparing for the move, including getting rid of a significant amount of stuff. 
I am very nervous about this move. I have plans to sell handcrafted items. I will be revealing my blog dedicated to these items early in the week, once the inspection has come back. The inspector wants to consult with a structural engineer regarding the foundation before he gives us his final assessment.
I am really no longer able to work "normal" jobs. Once the property has been purchased, I am going to have to go to social services in the county where the property is located and talk face to face about why my 401K, which I can't access without a significant penalty until I reach retirement age, is preventing me from qualifying for SNAP. Thankfully, I get Medicaid, but I don't get SNAP. I find this ridiculous, considering that I made less than $10,000 last year.
This place really is the last stop on the line for Yours Truly. If I can't make a go of it here, I'm well and truly done. 
I have a strange and amazing imagination and a lot of fine ideas. The problem is getting people to know about me.
I am also not known for my normalcy or for being sugar and spice. I am not sweet, petite, or pretty, and I tend to speak my mind. One person referred to me as flinty. I identify as a curmudgeon. I have heard that well-behaved women rarely make history. It would be a shame if such a badly behaved woman as myself was buried by time and dust, I think.

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I'll go more in depth with this issue later, but I think that it's worth mentioning that many people can no longer afford to live in the city. This house is being purchased with money that my son's father inherited. I can tell you this: $200,000 may sound like a lot of money, but it isn't.
We could piss this money away on rents of $1200 per month (and rising) for a modest, two-bedroom townhome. I love this place, I really do, and at $1200 a month, it's cheap for the Denver metro area. But the rent rises every year and staying here has become unsustainable for two disabled people who are receiving absolutely no help from the housing authority.
We could buy a condo in the outlying areas of the Denver metro area. The only acceptable one we found would have been $240,000. It had three bedrooms and one bathroom. My son is inviting a friend to live with us. We would have felt like we were all on top of each other pretty quickly, and there would always have been a queue for the loo. Not fun!
We could purchase a mobile home for around $90,000 and piss away $700 a month on lot rent. Mobile homes do not earn equity, they depreciate like a car does. I will discuss the money pit which is the mobile home that I own and am clearing out to sell at another juncture. Everything is broken down in this place and I have never had the money to replace or repair it. There was a flood which required treatments for black mold in the aftermath. It's possible that the place will need to be condemned. I'm hoping it can be salvaged because I'd like to potentially get back a little money from it.
The Grover Hotel will cost $90,000. Admissibly, it needs a lot of work, which will come out of the remaining money. However, it has six bedrooms spread out over two floors. It has a basement. It has an attic. It has a back yard. I'm not sure who you'd have to kill to get something like that in the Denver area, but I do know you couldn't get it legally.
Housing costs are driving the working class out of the cities. This means they either have to make long commutes, or they end up unemployed and on welfare living in rural areas. 
Denver, like other major cities, likes to brag about how they've created apartments with wonderful amenities right next to the transit hubs. While this is true, the rents start at $2000 per month for a closet (small studio apartment). The working classes cannot afford to live in these places. I guess we can set up tents in the parking lots of abandoned buildings, hope that the restaurant throws out some edible food, and use the area between dumpsters for our toilet while hoping not to get bit on the ass by a rat. No, I'm not being hyperbolic. This sort of thing is actually happening every day.
My son and I will come back to Denver once a week for our woodworking class and pick up a week's worth of groceries. Denver is more than 100 miles from Grover. We may visit the Botanic Gardens once a month. We lose out on all the cultural activities that we loved, such as going to the museum. I was working, which meant something to me, but I have to stop doing that and hope for the best when it comes to creating my own products to sell.
This is the sort of thing that happens when people are punished for being part of the working class and for being disabled.
We need to stop looking down our noses at the working class. Not everyone can or wants to be a CEO. That person at the McDonald's who made your burger and fries enabled you to not have to make your own burger and fries. Why in the world anyone believes that people in the working class should be punished by being forced to live in poverty is beyond the scope of my imagination.
American society as it currently stands is not sustainable. We either need to implement changes that benefit the middle and lower classes or things are going to break down even further. This never leads to anything good.
I hope you will all visit my new website when I reveal the URL. I want to do some giveaways and think of ways that we WAH folk can help each other.

~Cie~

Wednesday, May 8, 2019

Happy 29th Birthday Michael

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Haiga copyright The Real Cie

My son was born on this day 29 years ago at 8 A.M. I was unconscious at the time. He was a long baby with no meat on his bones: 19 inches long, 5 pounds 12 ounces. He lost 4 ounces of that weight after being born and scared the hell out of me. He had to be fed every two hours because his blood sugar kept plummeting.
My son is a very intelligent chap, but he doesn't do things the way our current society thinks people are "supposed" to do things. He's high-functioning autistic and battles depression and anxiety. He has a great artistic eye and loves photography and woodworking. He learns best by doing and does very poorly with attempting to learn from textbooks and lectures, which is why he ended up not doing well in college except for in his German class.
My son and I are stocky people, so with the foolish biases that modern society holds about larger people, most people think we eat a lot. We don't. We are food insecure. We ration our food and tend to only eat one or two meals a day. 
Our neuropsychological conditions and my physical issues mean that neither of us can work conventional jobs. Since modern society has Draconian ideas, disabled people are punished and not allowed adequate food or housing.
I am not being hyperbolic when I say that if it weren't for my son, I would not still be in this world. So, now you know who to blame for my continued existence.
Happy birthday, Michael, and may you have many, many more, and may each one be better than the last.

Yo Mama

Wednesday, March 13, 2019

From Nurse to Nothing: How I Lost My Profession


Once upon a time before my own disabilities worsened to the point where I could no longer do the work, I was a home care nurse who cared for kids like Brooke.
Back when I was caring for kids with genetic disorders, I served a function which classified me as a "worthwhile" member of society, and I was proud of what I did.
I generally worked a minimum of 48 hours a week, and it was not unheard of for me to work 60-hour weeks. I was a productive member of society. I made around $40,000 per year doing this work. 
I wasn't one of the favored class of home care nurses because I have never been good at working day shifts. I don't sleep well at night, and my broken brain causes me to become severely clinically depressed when I work early shifts regularly. However, night shift workers are a necessity in the medical field, so I got plenty of work.
When I was 49 years old, a flaw in my DNA caused me to develop diabetes. I wasn't exactly surprised, considering that my endocrine system is, overall, a trash fire. My thyroid immolated itself when I was 15 years old. I had polycystic ovarian syndrome, and when I was in my thirties, I developed Cushing's syndrome. 
I have a puffy "endocrine face" and a large body type. Given my endocrine problems, it is highly unlikely that I will ever be thin unless I become critically ill as my great-grandmother did. She developed acute myelogenous leukemia, dropped from 300 pounds to 95 pounds within the space of a year, and died. But, hey, at least she cut a svelte figure in her casket, amirite?
Fuck diet culture. Fuck fat shaming and thin praising. Fuck all of that shit. I spent more than 30 years of my life trying to hate myself thin. It's all a pack of lies benefiting no-one but the multi-billion dollar diet industry. Homey don't play that shit no more. I have too many real problems to care what some petty asswipe thinks of my physical appearance.
The chickens came home to roost one night. I'd been pushing myself really hard for more than a year, working 48 to 60 hour weeks. I told myself it was what I needed to do to prove that I was a productive member of society.


Meanwhile, my diabetes was getting worse. I needed to start using insulin, but I was in denial. I had this screed embedded in my brain chiding me that to use insulin was to be a failure. This is an incredibly stupid thing to believe, either consciously or subconsciously. Needing insulin is not a personal failure, it is a failure of the pancreas. Nobody should be taught to hate themselves because they have a zombie organ taking up space in their body. Zombie organs are the result of a fault in a person's DNA, not in the person themselves.


I was extremely sick on the night that my career and my earning potential both were shot down in flames and went up in smoke. I had a severe respiratory infection. My coordinator told me that I should continue working with my main patient because I had contracted the respiratory infection from that patient and therefore couldn't infect him. He told me that the family really needed me there.
I wanted to be cooperative. I wanted to be seen as a team player. I wanted to help the family. In the past, the coordinator had told me that they were going to replace the full-time nurse on the case with me because she had lupus and tended to call in quite a bit because of it. I felt that I couldn't mention that my diabetes was getting worse. So, against my better judgment, I went to work.
I fell into a deep, dark sleep at around two in the morning. I remember nothing about falling asleep. There were no dreams. There was just darkness. I remember sitting there watching the patient, and the next minute I blinked and saw the patient's father sitting at the end of the bed glaring at me with hate in his eyes. I apologized profusely, gathered my belongings, and left quickly. I knew I would be fired for what had happened. My life as I knew it ended at that moment.
In reality, I had been asleep for about twenty minutes. I had no concept of that time passing. I had a small stroke, which I would learn also altered certain facets of my cognitive abilities as well as increasing overall muscle weakness and causing me to become fatigued even more easily than I had before.
I tried to go back to work in long-term care. When I was doing my long-term care internship in nursing school, I got high marks for my medication passes. I was organized. I quickly memorized which patient needed what medication when. I was fast and I was competent. I didn't really want to work in long-term care, but I told myself it's what I had to do.
I quickly learned that the skills that made me such a stellar med pass nurse had been wiped out by the stroke. I knew that patient X needed medication Y at Hour Z, but I couldn't make my brain understand what I was supposed to do with the information. I understood each component, but I couldn't make them work together.
I was utterly lost, and it didn't help that there was never any time to stop for a break so I could eat a little something. My blood sugar tanked. I almost left mid-shift. As soon as I got home, I emailed my resignation. I knew there was no way I would ever be able to work as a nurse again. I had failed like I always do.

~Cie~

Here is the last diet book you'll ever need. You're welcome.

Monday, February 11, 2019

Inspire Me Monday #214: Get Angry


Can I inspire you to be angry today?
It's hard for me to type a post about anger without using salty language, but I'm going to keep it clean.
Can I inspire you to open your eyes and see that things just aren't right?
Can I inspire you to see that it isn't right that people should be forced to sleep on the street?
Can I inspire you to face the fact that those people don't "deserve" this?
Can I inspire you to understand that it isn't right for people in the lower classes to be unable to afford decent housing?
Can I inspire you to see that it's wrong for people with disabilities to have to choose between eating and having medical care and being able to earn a living wage?
Can I inspire you to see that it's madness for people to have to be in debt for years for trying to better themselves by getting a higher education?
That it's madness that most higher-paying jobs require higher education but that education is out of reach for the poor?
Can I inspire you to realize that a society of haves and have-nots benefits no-one but those in the highest positions?
Can I inspire you to realize that the only thing "trickling down" is a word that I can't use in a "family friendly" post?
Can I inspire you to understand that the homeless are not "just lazy," that the poor are not "just stupid," that the "welfare queen" is a myth, that only a very small percentage of people attempt to defraud the welfare system?
Can I inspire you to see that very vulnerable people are falling into the cracks and have nowhere to turn for help?
Do you know that many elderly people live in poverty?
Do you know that many single parents live in poverty?
Can you see that there are a lot of people who used to work a "good job" but now need assistance, that the help is not there, that they didn't suddenly become "lazy" and "shiftless?"
Can I inspire you to realize that people with substance addiction issues deserve help, not jail?
Can I inspire you to understand that mental illness is not "laziness"?
Can I inspire you to understand that everyone deserves adequate food, shelter, medical care, and education?
Can I inspire you to understand that service workers are not "lesser" and do not deserve to be stuck working multiple jobs to make less than a living wage?
Can I inspire you to be angry today?
Because until we all get angry enough, nothing is ever going to change.
If nothing changes, things are only going to get worse for all but the wealthiest one percent.
I hope that I can inspire you today.

~cie~