Showing posts with label cie's favorite people. Show all posts
Showing posts with label cie's favorite people. Show all posts

Sunday, February 23, 2020

Come As You Are Party: Wired Differently or Just a Flake?

Image by Wolfgang Eckert from Pixabay


It is my hope to back away from apologizing for who I am and instead explain about myself so that those I interact with might develop an understanding of those of us who are wired differently.

I have type 2 bipolar disorder and ADD as well as complex PTSD and OCD. I wasn't properly diagnosed with bipolar disorder or OCD until I was almost 40. I didn't know I had ADD until I was in my 50s. I was just always scolded for being forgetful and distracted. I have always vacillated between being Ms. Wonderful and being that flakey a-hole that everyone hates. I understand why it happens now, but I can't change the past. I wish people would try to understand me a little better, but I'm not going to hold my breath.

My son will be 30 this year. He is high-functioning autistic and has ADHD as well as anxiety issues and major depression. He is very intelligent and has read the entire Amber series (Roger Zelazny), much of Tolkien's writing, The Count of Monte Cristo, the works of C.S. Lewis, and the list goes on, but he can't learn from a textbook to save his life. I think the current educational system does a very poor job of addressing the needs of those who are not neurotypical. 

I technically also have a diagnosis of borderline personality disorder, but it is my opinion that borderline personality disorder is actually a form of complex PTSD and is an outdated and sexist diagnosis. It is almost exclusively applied to girls and women. Everyone who has it has endured some form of trauma, whether physical, psychological, sexual or a combination thereof. 

~Cie the Ornery Old Lady~



Image copyright Open Clipart Vectors

Sunday, December 22, 2019

The Crazy Creatives Cheerleading Camp Come As You Are Party + Inner Champion Workbook Chapter 7: Find Your Why



Disclosure: If readers purchase a copy of the book through the preview link, I earn a small commission from Amazon.

Five things that make me happy:
1. My son
2. Writing
3. Doing crafts, i.e. loom knitting
4. Exploring nature
5. Learning new things

Identify why each of the above makes you happy. For example, if vacations make you happy, ask yourself why. Are they relaxing? Are they a hassle or expensive, but worth every penny because of what you learn about the world? Is it the time spent with loved ones?

Why these things bring my happiness:
1. My son is simply one of those people who was born with a desire to be kind. He wants to make the world a better place. He doesn't care about being showy or flashy. He just wants to be able to do his own thing. He is very good at working with his hands and has a great artistic eye. 

At times, I have not been as supportive of him as I should have because I misunderstood him. My parents also misunderstood him and scolded him for not "trying harder" when he would withdraw. 

Neither my son nor I were aware until he was an adult that he is on the autism spectrum. He hid a lot of his distress from overstimulation. He was born in 1990, and at that time, most people believed that autism was identified by the pronounced behaviors in people who are more severely affected, i.e. rocking and screaming. Most people believed that everyone with autism is non-verbal.

My son has since been able to reveal such characteristics as extreme sensitivity to sounds. He turns on rain sounds because otherwise, the humming from his phone charger disturbs him. I can't hear the phone charger at all. He is very aware of the sounds of water running through pipes. One time when the washing machine hose was dripping and causing water to run down the laundry room wall into the basement, he heard it all the way up on the second floor of the house and went to check it out. I was completely unaware of the problem.

I first started to suspect that my son might be autistic when he would turn the air conditioner in his room down to the coldest level while he was sleeping in order to be able to sleep under his heavy comforter even in the hottest days of summer. Weighted blankets have been shown to be very helpful in calming people with autism. Fortunately, at this point, the knowledge about the condition has increased exponentially.

However, society is often very slow to catch up. People with autism still tend to be treated as if they are retarded. People with autism are intellectually diverse. Some have severe intellectual disabilities while some have higher than average intellectual capabilities. People with autism are often pigeonholed as having lower than average intelligence because they tend not to learn well using traditional methods. 

My son, for instance, has trouble learning anything at all from a textbook. He does not have problems reading long novels that hold his interest. The best way for him to learn a new skill, however, is by observing and doing, not by reading a boring textbook and attempting to answer a long roster of meaningless questions. For instance, when he was in the EMS program, he would become extremely frustrated by trying to read and answer questions in the textbook. It did not matter if I read the text to him, he didn't absorb it and trying to just upset him. However, he took a lot away from his clinical experiences, and he did well with the medical terminology and even the pharmacy calculations which were always a sticking point for me.

Unfortunately, at that point, the community college EMS programs were hell-bent on passing no more than 75% of their participants because they wanted to prove how "tough" their standards were. I was astounded by the amount of information that students were being expected to learn in the space of one semester. I had gone through the EMS program six years prior to when my son was in it, and at the point when he entered the program, the students were expected to learn skills that were previously part of the paramedic program. 

When my son opted to drop out of the program, I fully supported him. I was aghast at the changes that had taken place. It's a damn shame too because I think that my son would have made a good EMT. However, he probably would have opted to work in an emergency room rather than on an ambulance because, like many autistic people, driving is a skill that is problematic for him.

2. Writing has always been my main way to survive. I do not think that I would last long if I didn't write. If I go for several days without writing, I start to become clinically depressed. It helps me work through problems and provides me an escape from a world that I've always found hostile to my very being.

3. Unlike writing, there is no impetus for me to have a certain level of "success" when it comes to my crafts. I just do them because I like to.

4. Exploring takes me out of my everyday environment, away from civilization, to a place that does not judge me. Connecting to the natural world renews the spirit.

5. One should not cease learning simply because one is not in school. Without new knowledge, a person stagnates. Learning because I want to learn just feels good. 

How my goals connect to the things in life that bring me joy:

1. I want to succeed because I want to be able to support my son in his own goals and give him the best life possible. He deserves this.

2. I would like to earn my living writing. However, I doubt this will ever transpire. So, I intend to write as if I were earning my living doing so, but not as if I MUST earn my living doing so. I never want it to be a chore, and I never want it to become a duty or a means to seek acceptance. When I start doing any of those things, I know I'm on the wrong track.

3. I want to be able to have enough money to do my crafts anytime I want and not have to worry that I should be doing something that's earning money instead.

4. I want to have enough money to have the time and resources to explore and take care of nature.

5. Learning is necessary to find new avenues to obtaining my goal of multiple income streams. Also, without learning, life stagnates.


Free use image from Pixabay
Will work for tips and links

Saturday, December 21, 2019

Blow Your Stack Saturday + Inner Champion Workbook Chapter 6: Don't Give Up



Disclosure: If readers purchase a copy of the book through the above link, I will earn a small commission from Amazon.

How can I break this goal into smaller, achievable steps?
With the publishing goal, I'm already doing this.

I think I'm actually already doing it with the Goat Yoga Studio goal as well.

I've also been thinking about purchasing condos in the Denver area (single condos, not an entire building) to use as Air BnB/rental properties. 

I've become better within the past five years about breaking my bigger goals down into smaller, achievable goals. Which would have made me about eighteen when I gained this sage wisdom in my life.

Nah, I'm just messing with you. I'll be 55 in less than two months. I honestly still wasn't very good at breaking things down into smaller goals when I was fifty. Or fifty-one. Or fifty-two. It probably started to sink in when I was 53, although I was still recovering psychologically from the fact that I could no longer do the kinds of physically demanding work that I had done all my life.

Okay, I really didn't learn the lesson until this year. I'm kind of slow on the uptake sometimes.

How will I celebrate my accomplishments along the way?
With my son. Other than him, my family has never been supportive of my dreams. I could count my real friends on one hand if you chopped off half that hand. None of them live close to me and I've never met any of them in person.

Who will I turn to for help and encouragement?
See above.

If my first attempt does not work, what is the next approach I will try?
I'll just keep going at it with the publishing. However, as I previously mentioned, I'm not doing that to try and become The Next Big Thing. I'm just doing it because I want to.

With the goat yoga studio, if the property across the way is sold, I'll switch gears and move the idea to the fall-back property, which currently has a decaying structure on the land. The basic premise is the same but the execution is somewhat different.

The Air BnB/rentals in Denver thing is something that I've been considering and doing research on for a while now. It isn't a burning desire, so if it doesn't happen it doesn't happen. It's a potential income stream, but I have to be careful not to fall into a money pit.

Friday, October 11, 2019

Carpe Diem Renga with Issa: Sparrows


spring peace--
after rain, a gang war
garden sparrows
the seeds that I have planted
are a victory buffet

don't let the plum blossom guard
cut your tongues...
Sparrows! 
let voices be a whisper
until you are safely past


are the sparrows too
having a private party?
plum blossoms
no, I was not invited
I now watch from the window

while I watch
he's off to make a living alone...
baby sparrow
sometimes the ones who leave home
invite the parents to stay

living in harmony--
the sparrow has
both parents!
will the parents be able
to live in harmony too?

on the tip of the
newly sprouted bamboo...
a baby sparrow
a small and innocent thing
in a world without a heart

~Issa and Cie~



Notes:
The Hokku stanzas in these Tan Renga verses were composed by Kobayashi Issa (June 15, 1763 – January 5, 1828). The Akegu stanzas were written by me.
The Akegu in the last three verses are references to my son, without whose kindness I would be homeless. The property he bought will eventually also become home to his father who is currently living in Arizona helping his own father. When his father passes, he will sell the place in Arizona and move here.
We were divorced in 1994 when our son was four years old, and we have lived in roommate situations since then, although I was always relieved when he moved on to something else if I am honest. That probably won't happen this time, due to compromises in his health as well as mine. However, this is a big enough place that we should be able to keep from killing each other.

Monday, September 30, 2019

Carpe Diem Acts of Devotion: The End of the Road


the end of the road
I leave it all behind me
in joy and sorrow

~Cie~


Notes:
This Senryu was partly inspired by the image and partly by the song "In Joy and Sorrow", which was written by my fellow black dog attendant, Ville Valo.
Some people with mood disorders take medications.
Those of us who don't respond well to medications write bleak a.f. poetry.


Thursday, July 11, 2019

Carpe Diem Summer Challenge 2019: Sundown

Doomed version 7
Photoshop manipulation by The Real Cie

Some sundowns rise on another day of loss and one day set forever on a self ravaged by a broken mind.

~Cie~


Note:
Sundowning is a term for confusion in a dementia patient which worsens as evening comes on. Towards the end of his life, my father, who had vascular dementia, was sundowning. He confused reality with events on television. 
My father was a college professor. I have cared for more than one college professor or other people whose work revolved around using their mind who ended up with dementia. The junk science sharticles which proclaim that exercising your mind helps prevent dementia make me see liquid murder. 
You know what helps prevent dementia? Not having the DNA trigger for dementia coded in your genetic makeup. You could watch nothing but reruns of Jersey Shore and the Flavor of Love for your entire life and not end up with dementia if the trigger for dementia isn't in your DNA. I don't recommend it, but you could.
Dementia is horrible. It destroys lives. The least we could do is not insult those suffering from dementia and their caregivers and loved ones by publishing victim-blaming crap. 

Image created by The Real Cie

Copyright taysuffocation @deviantart.com
I'm hoping one day to get this tattooed on my arm in honor of my father

Wednesday, May 8, 2019

Happy 29th Birthday Michael

Click to Enlarge
Haiga copyright The Real Cie

My son was born on this day 29 years ago at 8 A.M. I was unconscious at the time. He was a long baby with no meat on his bones: 19 inches long, 5 pounds 12 ounces. He lost 4 ounces of that weight after being born and scared the hell out of me. He had to be fed every two hours because his blood sugar kept plummeting.
My son is a very intelligent chap, but he doesn't do things the way our current society thinks people are "supposed" to do things. He's high-functioning autistic and battles depression and anxiety. He has a great artistic eye and loves photography and woodworking. He learns best by doing and does very poorly with attempting to learn from textbooks and lectures, which is why he ended up not doing well in college except for in his German class.
My son and I are stocky people, so with the foolish biases that modern society holds about larger people, most people think we eat a lot. We don't. We are food insecure. We ration our food and tend to only eat one or two meals a day. 
Our neuropsychological conditions and my physical issues mean that neither of us can work conventional jobs. Since modern society has Draconian ideas, disabled people are punished and not allowed adequate food or housing.
I am not being hyperbolic when I say that if it weren't for my son, I would not still be in this world. So, now you know who to blame for my continued existence.
Happy birthday, Michael, and may you have many, many more, and may each one be better than the last.

Yo Mama

Tuesday, April 30, 2019

NaPoWriMo 2019 Day 30 + Poems in April 2019 Day 30: Thank You Jimi

Copyright Nico van der Stam

I want to thank you
For some much-needed wisdom
Across many years

~Cie~



Notes:
I watched the Jimi Hendrix documentary, Voodoo Child, this evening. 
I didn't really become a Jimi Hendrix fan until I was in my teens. He died when I was only five years old. I saw a documentary about him when I was eighteen or nineteen, and it was good, but this documentary reveals more of his personal thoughts. He was brilliant and he left a lot of wisdom for the world. 
The wisdom he imparted to me today is to stop looking for adulation and approval from others. This is something that I've struggled with my entire life.
When asked how it felt to receive so many compliments about his work, Jimi said that he really didn't care about compliments, in fact, he found that they distracted him from what was important: creation.
I think that's what it really means to be secure in oneself. Not so much thinking that one is flawless, but to be able to see the worth of one's goals and actions regardless of the opinions of the masses. 
Lots of views and comments stroke the needy ego of the insecure and wounded child that remains within the crusty, curmudgeonly, and likely not at all tasty exterior shell which houses my soul. 
This becomes a distraction to the creator. I start wanting to please my visitors rather than express myself through my words.
Next time I get stuck in that unharmonious groove, I need to remember Jimi's wise thoughts on the matter.
I will always be a fan of Jimi Hendrix the musician. 
Perhaps most people won't understand this, but that doesn't matter.
I also appreciate Jimi Hendrix the philosopher, and I'm grateful for the wisdom and works that he left behind.
(Don't move: this has been a Haibun!)