Showing posts with label endocrine problems. Show all posts
Showing posts with label endocrine problems. Show all posts

Monday, December 16, 2019

About Me Monday + Inner Champion Workbook: Chapter 2: Changes



Disclosure: If readers purchase a copy of this book through the preview link above, I earn a small commission from Amazon.

Greetings, fellow Crazy Creatives, and others. Today I am continuing my shared journey with the Inner Champion Workbook, which is an adjunct to the above autobiography by bodybuilder Lauren Powers. As I said in yesterday's post, this is a book that came as a complete surprise. I kept putting it to the bottom of my list of books for review because I thought it was a workout book. It isn't.

Today's chapter addresses changes. Let's get to it!

"Whether we’ve embraced it or not, we’ve all faced changes in our lives. In this chapter, identify some of the changes that you’ve experienced in your life. First, think of a change that happened to you that was out of your control. Then, think of a change that you actively made. How have these changes altered your journey? How can they be seen as contributing positively to your identity?"

Change that I made:
I no longer work for anyone else. I am not an employee or contractor. I am strictly a freelancer.

The reason I made the change:
Mostly out of necessity. My physical health took a few critical hits, and then I ended up moving to a remote location which is 50 miles from the nearest city. I do not have the strength or stamina to make 100-mile round trips to a job several times a week. I no longer have the strength to work the types of physically demanding night shift jobs that defined me for many years. Most clerical jobs are on the day shift, and I become severely depressed working day shifts because of my lifelong difficulty regulating my sleep. 

The impact it had on my life:
I am more stable emotionally, although I worry about my low income. However, I am not allowed to make more than $1100 a month or I lose Medicaid. Isn't that the stupidest thing you ever heard of? People outside of the United States often express their shock about our health care system. As someone who has been a victim of this system for a lifetime, I'm not shocked by it but remain appalled. A for-profit health care system exists to help nobody except for institutions gouging the ill and infirm.

Change that happened to me:
In 2017, my life changed forever. I was fired from my job after falling into a very deep sleep while sitting with a patient on the night shift. It is my contention that I had a TIA (transient ischemic attack). I was very sick with a severe respiratory infection that I had contracted from this patient. The coordinator insisted that I go to the job anyway, reasoning that I could not reinfect the patient because I had contracted the infection from him. The coordinator also used guilt, stating that "the family really needs you." 

A bit of further background to this story. My diabetes was becoming worse at this point. I wasn't yet using insulin but knew the day was coming soon when I would have to. I was working 60 hour weeks. I was afraid to say anything to my coordinator because he kept telling me that they were going to replace the primary nurse on the case with me since she had lupus and this meant that she called off sick a fair amount to manage her condition. So I kept my own health issues to myself, fearing that I would lose work if the company realized that my health was infirm.

After being fired from this job I picked up more shifts with a company where I was working one night once a month with a patient I'd worked with previously. I lost $4 per hour but ended up being able to go back to full time fairly quickly. However, this patient's condition declined, and he ended up in the hospital. The agency never got me another job.

I went to work delivering food for Uber Eats. I was actually losing money doing this job. I found work with a company called GoPuff, which is a subsidiary of GrubHub, delivering groceries. The onsite managers were great but GrubHub does not give a flying fuck about either its employees or its contractors. 

Many nights, one manager was left in the warehouse running around like a chicken with her head cut off to pack the orders while the other two managers switched over to driving. The drivers were given ridiculously large numbers of orders and GrubHub customer service couldn't be arsed to call the customers and tell them about the delays. The customers were always angry and took it out on the drivers. 

As many of the deliveries were in downtown Denver, I often had to park several blocks from the location and carry heavy loads, sometimes up several flights of stairs in buildings with no elevator. On one occasion, I almost fell through the rotting boards on a porch. 

I started noticing tingling and numbness in the fingers on my left hand but ignored it. The tingling progressed to mild and then moderate pain running from shoulder to fingertips and then transitioned to pain so severe that I was having trouble sitting up for more than about 45 minutes before I had to lie on the arm to try and numb it. I ended up quitting the job. I had to wait for two weeks before Medicaid kicked back in. The pain was so severe that I considered committing suicide. I may well have done so if not for the fact that I knew I would be able to get physical therapy once Medicaid kicked back in. That was my only hope.

Fortunately, physical therapy helped greatly. My arm went from being in constant severe pain to being in moderate pain with some bouts of severe pain. It progressed to being in mild pain with bouts of moderate pain and then, to my joy, to feeling like a lump of clay with bouts of mild pain. 

Unfortunately, Medicaid only pays for 12 sessions of physical therapy for any given issue. My arm remained in the "lump of clay" mode for about a year. It has since progressed to low-grade numbness and tingling, which is where it will probably remain for the rest of my life. I have to be careful about lifting too much with this arm.

Once I was able to return to work, I delivered food for Cluster Truck, a delivery-only restaurant, from December 2017 until June 2019, when I found the wonderful Grover Hotel and my son decided that this building was our best hope for having a place to live for life. As I said, Grover is 50 miles from anywhere, which is why I made the decision that given my health issues, it was best to work from home rather than attempting to find a position working for someone who would be flexible regarding my health issues.

The impact it had on my life:
For the most part, I really like what I do. I wish I could have/would have made this decision sooner. I have always hated working for other people. In spite of the fact that I liked the patients I cared for, I was extremely burned out on health care, and my body was badly compromised from years of neglecting to take care of myself while devoting myself to caring for others as well as from the health issues which are due to faults in my DNA, i.e., my trash fire endocrine system.

One positive aspect or life lesson from the event:
I have been able to get adequate rest for the first time in something on the order of 40 years. I was always the "I'll sleep when I'm dead" kind of person. I often don't sleep well at night, and even though I'm a night owl, the night shift will mess your body up. I was always in a fog. 

I never respected my body and always told myself to shut up and quit whining. While I don't think I will ever be able to "love" myself (that concept is completely foreign to me) I have learned to respect myself and to be better about not letting people walk all over me.



Free Use Image from Pixabay
Will work for tips and links

Friday, November 8, 2019

Friday Flashback: Why I Wouldn't take a Cure for my Bipolar Disorder


ORIGINALLY POSTED 8 NOVEMBER 2018

Note for those who are sensitive about profanity:
This post contains it.
It is also snarky.
So is the a-hole who wrote it.
Just sayin'.

Now, here is something that will blow y'all's minds.

If there were a cure for bipolar disorder, I wouldn't take it.

I know a lot of folks are saying "but why wouldn't you want to fix this thing that is wrong with you?"

First, you may have heard about people who have had procedures done to restore their sight or hearing after years of being blind or deaf, and they have trouble adapting to the world with this new sense. They have learned to "hear" by feeling vibrations, or to "see" by touch and sound. The new sense throws their perception off.

I would not know how to think and feel without bipolar disorder. I would have a lot of trouble adapting. I might even become suicidal.

Further, I have come to believe that this anomaly doesn't make me "wrong." It makes me different. The world is too quick to deem difference in cognition or physical ability a bad thing which needs to be repaired. I think it would be a better world if we embraced people who deviate from the norm rather than shaming them into conformity or isolation.

Would I take a cure for my endocrine problems?

In a heartbeat! I would love to not have to stab myself in the abdomen with a needle before every meal. I would love to not have to worry about whether I will one day develop diabetic neuropathy or start losing my vision because of diabetes. I would love to not have increased risk of vascular malfunction because of this dumb disease. I would love to have a thyroid that actually works. I would rather not have had polycystic ovarian syndrome. My endocrine system is a cluster fuck. If someone could cure this mess, I would be thrilled.

If someone could cure my glaucoma, I would be over the moon.

I don't want my bipolar disorder cured. I have navigated the world with it for pretty much my entire life. To completely change the way my brain works would be frightening and, I think, detrimental.

But if someone could start working on cures for my physical ailments, I'd really appreciate it.

 ~The Cheese Hath Grated It~




Sunday, August 4, 2019

Tuesday, July 23, 2019

Carpe Diem Summer Challenge 2019: Shadow

Photographer unknown

I
blue autumn skies
folded into mountains
purple shadow

blue autumn skies
stretching endless before me
skies blue like your eyes

folded into mountains
a felled giant lies sleeping
dreaming of the past

purple shadow
falls over eyes which can't cry
I have seen too much

Jane & Cie

II
such a hot day
my shadow needs to cool down
under the willow

such a hot day
sun beats down unrelenting
upon troubled earth

my shadow needs to cool down
it steals away and leaves me
muscles wracked with pain

under the willow
I find trouble waiting there
in the form of thought

Kyoshi & Cie


Note:
The "sleigh" of the first Troiku was created by Jane Reichhold (1937 - 2016). The "sleigh" of the second Troiku was created by Kyoshi Takahama (1874 - 1958). I wrangled all the horses.
I have chronic, widespread, low-grade pain from fibromyalgia and am constantly hot and easily fatigued due to my various endocrine problems. The summer is not my friend.
Grover and Clem aren't bothered by this weather, seeing as Grover is a ghost and Clem is a mutant Cactus Man, or maybe a Man Cactus.




Tuesday, April 9, 2019

NaPoWriMo 2019: Just Another Day Again

Image by Sophie Janotta from Pixabay

Awake
Breakfast
Cook
Drive
Eat
Feed
Groceries
Hair
Imagine
Joke
Know
Learn
Mend
Nosh
Opine
Pay
Quest
Read
Sleep
Try
Utilize
Vent
Work
Xeric
Yawn
Zzzz

~Cie~


Note:
The NaPoWriMo prompt asked for a poem involving a list, and I took it literally and made a List Poem.
Xeric is a word meaning a state of dehydration, containing very little moisture. With my endocrine problems, dry skin is a real problem. The areas that had the worst problems with acne in my youth are now prone to flaking and redness. 

Thursday, November 8, 2018

The Cheese Grates It: Why I Wouldn't Take a Cure for my Bipolar Disorder


Now, here is something that will blow y'all's minds.
If there were a cure for bipolar disorder, I wouldn't take it.
I know a lot of folks are saying "but why wouldn't you want to fix this thing that is wrong with you?"
First, you may have heard about people who have had procedures done to restore their sight or hearing after years of being blind or deaf, and they have trouble adapting to the world with this new sense. They have learned to "hear" by feeling vibrations, or to "see" by touch and sound. The new sense throws their perception off. 
I would not know how to think and feel without bipolar disorder. I would have a lot of trouble adapting. I might even become suicidal. 
Further, I have come to believe that this anomaly doesn't make me "wrong." It makes me different. The world is too quick to deem difference in cognition or physical ability a bad thing which needs to be repaired. I think it would be a better world if we embraced people who deviate from the norm rather than shaming them into conformity or isolation.
Would I take a cure for my endocrine problems?
In a heartbeat! I would love to not have to stab myself in the abdomen with a needle before every meal. I would love to not have to worry about whether I will one day develop diabetic neuropathy or start losing my vision because of diabetes. I would love to not have increased risk of vascular malfunction because of this dumb disease. I would love to have a thyroid that actually works. I would rather not have had polycystic ovarian syndrome. My endocrine system is a cluster fuck. If someone could cure this mess, I would be thrilled.
If someone could cure my glaucoma, I would be over the moon.
I don't want my bipolar disorder cured. I have navigated the world with it for pretty much my entire life. To completely change the way my brain works would be frightening and, I think, detrimental. 
But if someone could start working on cures for my physical ailments, I'd really appreciate it.

 ~The Cheese Hath Grated It~


Friday, October 13, 2017

30 Days of Haiga 2017 Day 30 + OctPoWriMo 2017 Day 13: Suicide Ideation

Original background image:
Hannah Hoch, 1930
Words and text manipulation by The Real Cie

Notes:
With this image, I am caught up with 30 Days of Haiga. Too bad I can't use it for Inktober, which I am severely behind on, but that requires actually drawing something. I didn't draw (or paint) this.
The image references living with a mood disorder which includes suicide ideation. I've said it before, but it bears repeating, please respect me enough to know that, as a person of 52 years old and having at least average intelligence (even though I sometimes think I'm dumber than a box of rocks) who has lived with mental illness for her entire life, I know very well what meds are, what counseling is, and what an emergency room is. If I went to the ER every time I had a suicidal thought, I'd have to live there. I don't want to live there. 
When people tell me I should "think about seeing a counselor" or I should "consider getting on meds," it's pretty much the same as telling me that I should "consider seeing a doctor" because my blood sugar is elevated. Yes, I have diabetes. Insulin and metformin have worked pretty well for me, but sometimes, depending on what food is available and circumstances not entirely in my control, I may still have elevated (or diminished) blood sugar readings. As a veteran diabetic, I know the score with my blood sugar.
As a veteran of the mental illness wars, I also know the score. However, people tend to treat those with mental illness as if we are stupid children who don't know our own minds and bodies.
My life contains certain aspects that would probably depress a person who didn't have a screwed-up brain like mine which likes to exaggerate every emotion I feel. I work full time but don't have enough money to buy adequate food, which is crappy any time but has an added element of crappiness when you're diabetic. I "make too much money" to qualify for aid programs. When I started making "enough money," my Medicaid got cut off. I'm still behind on all the payments I fell behind on when I was underemployed after losing my job back in March. Like I said, GOOD FUCKING TIMES!
It seems that I no sooner catch up a little than something else comes along to run me over like a Semi barreling down a one lane road.
Last night I was thinking to myself "why don't I just do it? Nothing ever gets any better."
This thought wasn't one of the hyperbolic ones where I imagine flinging myself into a canyon a la Wile E. Coyote. I had some pretty realistic ideas on how to top myself. These are actually always in the back of my mind because I will utilize them toot sweet if I am ever diagnosed with dementia. I am not putting myself or my son through that shit, no way, no how.
Some folks will say "but the Conventional Wisdom when you're having suicidal thoughts is to go to Emergency Services."
As a veteran of the Mental Illness Wars, I can tell you that there's a myriad of reasons why that's the last thing many of us would do, one of them being the fact that I don't have the fucking time to be on a three-day psych hold. Guess what I wouldn't be making while I was in the psych ward arguing with a bunch of by the book types about the fact that SSRI's make me worse rather than better. That's right, a paycheck! I'm not stupid and I'm actually not delusional. Cold, hard logic dictates that I need money more than I need to seek help that isn't going to help me anyway.
The Haiga references the fact that on one hand I care very deeply and hurt very deeply. On the other hand, I've had so much pain in my life that I'm pretty well numb a great deal of the time. My heart feels like it's been shot full of Novocain which is wearing off. I hurt so much that I don't feel much anymore, and that hurts.
There's my story. I don't expect anyone to necessarily know how it feels, but I do expect respect for my experiences. 
No one would ever tell me to "stop being so hypothyroid," although, sadly, I'm sure a lot of people would be happy to tell me about the latest quack miracle cure, such as rubbing myself in black salt while standing on my head and drinking liquid Vaseline. It doesn't happen as much with hypothyroidism, but with diabetes, this is certainly something that happens quite often.


The point being, no-one would ever tell me to stop being so hypothyroid or even stop being diabetic (although they might tell me how I could cure my diabetes.) However, people think nothing of telling me and others like me to "just stop that stinkin' thinkin'," "just get on some meds," "maybe you need to go to church," "mental illness is caused by demons, wrong thoughts, bad karma," or one of my favorites, "stop looking for attention." 
I've also gotta love the people who post things like "how can anyone be a Negative Nellie when God has made such a beautiful world for us to live in? I just don't understand Teh Negativ Peepul!"
I used to feel really hurt and defensive when I saw such posts. At this point, I feel that these people are ignorant and lack empathy. Not everyone is fortunate enough to be wired to Always Look On The Bright Side Of Life. Even when I'm happy I'm always somewhat sad. I know that makes very little sense to anyone who hasn't experienced it, but it does not make me any less worthy of having a decent life than someone who is always Ms. Pollyanna Sunshine.
So, this is my last Haiga/Haibun for this year's 30 Days of Haiga. I can't say I hope you enjoyed reading it, but I do hope you might have learned something.

~The Cheese Hath Grated It~






Monday, May 1, 2017

AC/DC - Inject the Venom - HQ/1080p

break

Can't help but think of this song sometimes when it's Insulin Time. 
Honestly, though, I don't listen to AC/DC very much these days in spite of what they have meant to me during my life.
All the shit that's happened to them depresses the fuck out of me.
I talk about diabetes a lot because I'm still getting used to the idea of having another dying organ in my body.
I didn't talk about hypothyroidism or PCOS or menopause that much because menopause made me happy and resolved the problems of PCOS, and hypothyroidism required swallowing a couple of small pills.
I talked about glaucoma a bit when I was first diagnosed, but my eye pressure is good and my peripheral vision doesn't seem to have deteriorated, and the treatment is an eye drop in each eye once a day.
With diabetes, I have to inject something into my body to prevent elevated blood glucose from destroying other organs such as my kidneys and my eyes or possibly the blood vessels in my brain.
It isn't that the injections hurt. I hardly feel them. Oddly enough, they make me feel kind of empowered, sort of like "take that, you fucking dead pancreas! I don't need your stupid ass anyway!"
Nonetheless, it's kind of weird, and it's not something I ever thought I'd have to do.
In a few months, it'll be old hat, and I'll hardly ever mention it.
Unlike my stupid bipolar disorder. Lithium helps control the irritability and paranoia, but there are still issues, plus the stigma and ignorance surrounding psych disorders.
I'm just a huge fucking mess. I want a body without 99 million problems in my next life.
Scratch that. I don't want a next life. I just want to float around in the Aethers, being an asshole.

~The Cheese Hath Grated It~


Sunday, March 19, 2017

The Cheese Grates It: How To Treat Fat Patients


This is copied from my Trifecta of Mess Tumblr. The words belong to whoever is indicated at the top of the paragraph.

justthestupidparts asked:
When you became a doctor, did you not swear an oath to, among other things, try to prevent disease as much as treat it? Refusing to advocate weight loss to obese patients breaks that oath; how do you justify continuing to practice medicine? Serious question.

(The Cheese says: this is a fucking stupid person, and I'm not going to give them hits by linking to their stupid blog. Fuck them.)

agreekdoctor answered:
First of all, I apologize for taking so long to answer your post. When I received it I was still out of town. Second, I wanted to write something thoughtful and I needed time to not write something out of anger. Anger that you would accuse me of doing harm by not mindlessly insisting on weight loss as the ultimate solution to a fat person’s health problems.
To start with I would like to state that I do not refuse to advocate weight loss, where it is appropriate to do so. I assume that you are operating on the false assumption that being fat automatically makes a person unhealthy. I can assure you that it does not.
“But, what about the obesity epidemic? What about the diabetes epidemic? But what about…?” I hear you ask.
There are lots of illnesses that have been statistically correlated with being fat. But the thing to understand is that correlation does not equal causation.
Let's use Type 2 diabetes and fatness as an example. Diabetes type 2 is an illness of insulin resistance. That means the body requires more insulin to produce the same sugar lowering effect than a nondiabetic body would need. Insulin is produced by cells in the pancreas called beta cells.
Contrary to popular belief, people don’t just go from being nondiabetic to diabetic overnight. Rather there is a process that occurs. We have found that there are differences in a person’s beta cells that happen long before a person even begins to show signs of insulin resistance. Many people who go on to become type 2 diabetics will have higher levels of insulin circulating in their bodies for years before they even become prediabetic. One of the other functions of insulin in the body is to promote the storage of excess energy as fat. So, insulin makes people fat, and keeps people fat (makes it harder to lose weight).
Can you see where I’m going with this? The question now becomes, are people diabetic because they are fat? Or are they fat because they are diabetic? This is an extremely important distinction to make.
When I see a diabetic person, fat or not, I tell them to make sure they get plenty of exercise and to watch what they eat to control their carbohydrate intake. What does this sound like? “Diet and exercise.” The difference is that I don’t tell people to lose weight. Many of my patients who follow this advice do in fact lose weight, and that is fine. Many of my patients do not. That is also fine. They all have better control of their sugars, and in most cases, to similar degrees. I fail to see how not insisting on losing weight is “doing harm.”
There are times when a person’s weight turns out to be a factor in their illness and where weight loss may help in treating it. In those cases, I do suggest some weight loss. But in NO case is it ever necessary for someone to get to their “ideal body weight” to help their condition.
Finally, let’s look at the idea of “doing harm.” Did you know that studies (link and link) have shown that the medical profession as a whole is biased against fat people? That there are countless stories about people having serious illnesses going undiagnosed because they are fat and doctors refuse to look beyond that? That fat patients stop going to their doctors after being repeatedly made to feel ashamed for being fat by their doctors? For trying so hard to lose weight but not being “successful?” That, to me is the real harm that is done. The psychological harm. The physical harm that results from not going to the doctor for a serious problem because the doctor will either ignore it or just embarrass them again.
Are you aware that the vast majority of people who lose weight are not able to maintain that weight loss over the long term? And that people can end up far fatter than they would have become otherwise due to the lose-gain cycle. That that cycle can also cause serious harm to a person?
I care about each and every one of my patients whether they are fat or not. Whether they are healthy or not. Fat patients get the same consideration given to their concerns as thin people. I don’t simply dismiss things because a person is fat or tell them that losing weight is the ultimate answer. If my medical work-up indicates that losing a small amount of weight may help, then I suggest it. Otherwise, it is not necessary.
Finally, before you try to tell me about all the research that shows being fat is unhealthy, I have a few of links to lots of evidence-based medical research that shows that being fat does not necessarily make one unhealthy.
Link
Link with lots of individual links to various studies.
And finally,
Another link to lots of individual studies.
Serious question? Serious answer.


The Cheese replied:
I wish you could be my doctor.
My doctor tries, but he was trained in the school of fatphobic medicine, and sometimes it shows.
I am a heavy type 2 diabetic whose sugars are increasing even though I’m taking my medication, watching my carbs (most of the time, I admit that I’m not perfect) and starting to do some light exercise again after being sick for several weeks and having been working 60 hour weeks for quite some time. It’s looking like I’ll probably have to go on insulin.
I have to remind myself that type 2 diabetes is not a personal failing, it’s my pancreas failing.
I lost about 40 pounds after I started treating my diabetes. People make me so mad because insulin resistance (as well as other endocrine problems) can promote weight gain and make weight loss difficult. I didn’t do anything to earn fucking accolades for dropping 40 pounds. As the late, great Carrie Fisher said, youth and beauty are accidents of time and DNA. My weight loss was the result of treating a medical condition, not making some kind of Amazonian effort to become the Perfect Woman ™. Nothing more, nothing less.

~The Cheese Hath Grated It~



Thursday, December 22, 2016

Let's Get Physical: Your Hostess With The Mostest (Bullshit Physical Problems, That Is)


I'm Cie, and I'll be 52 in February. I've felt tired for as long as I can remember.
My fibromyalgia manifests as chronic widespread low-grade pain, so it's not unbearable.
I can work. However, if I do physically punishing work, I am in pain for twice as long as a normal person. If I overwork myself, I'll end up in a severe state of depression.
I also think I got stuck with a third rate endocrine system. I have hypothyroidism, PCOS, and type 2 diabetes.
I also have type 2 bipolar disorder. Honestly, I don't know what normal feels like. I haven't felt normal since I was a young child.
That's the physical aspect of me in a nutshell. What you see is what you get. Don't like it, don't look at it.

~Cie~